Dear PANDAS Mama, Papa, Friend, Sister, Cousin et al:
Holidays are the worst when your child is sick. The worst. Darkness. Unbearable. Loneliness on a scale that most people never get the privilege of enduring.
Holidays perfectly reflect the absolute loss of goodness and innocence that accompany a PANDAS life.
So if this is where you are, please know that I know. You are seen, you are heard. You may feel completely devastated and invisible in your devastation, but there are thousands of us out here, standing with you and holding you from afar.
I wish we could hold hands today, all of us together, around the world, in our pain and in our hope for better times to come. Or lack of hope. And anything in between.
So just know, that whether seen or not, felt or not, there are many of us out here, together and completely alone, reaching our hands around the world to find and send strength to everyone that needs it; to hold each other up for just one more day; to envision our children in a brilliant light where health and goodness and innocence are fully restored; where our incredible personal and financial losses to this illness are fully replenished; where our collective heroic journey is somehow mitigated and celebrated.
Our rage, dispelled.
Our own innocence - our lost dreams of a happy life - somehow reborn.
Our souls, redeemed.
I love and see you, all.
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